How is the type 1 diabetes journey – from diagnosis, through starting on multiple daily injections, to beginning on an insulin pump and other milestones – viewed and managed from the caregiver perspective? Join D-Mom Leighann Calentine in this 6-part series as she discusses her experiences navigating the diabetes journey as a parent of a child with type 1 diabetes.
Check out part 1 , where Leighann recounts her daughter’s diabetes diagnosis.
“At one point shortly after diagnosis, she decided that she absolutely did not want to get another injection. What could I do? She needed insulin to literally keep her alive.”
When our daughter was on multiple daily injections, she received four injections a day: three were fast-acting insulin injections given at meal times to cover her food and to bring her blood sugar back down into range, and the fourth was long-acting insulin given at bedtime. The frustration with injections for us was that no matter how closely we counted carbs and did everything we were supposed to do, we just couldn’t seem to get her A1C down into the range that it should have been for a child with diabetes her age.
I did everything by the book and that meant that I had to run a very tight ship. Our schedule was very regular. She had three meals and three snacks that were all timed so that the fast-acting insulin worked as best as it could. But because she was so young, diagnosed at just three-years-old, how much she would eat could vary greatly. To make sure that she was only getting insulin for the food she actually ate, we gave her insulin after the meal. Insulin works best when it has time to start working, but that was the best we could do.*
Because her meals and injections needed to be spaced out, we pushed her bedtime back to 9:00 PM, which was very late for such a young child in my opinion. But with dinner beginning at 6:00 and her post-meal injection at about 6:30, that meant her bedtime snack and long-acting insulin injection didn’t happen until 8:30. And we still had to brush her teeth, read to her and snuggle.
One of the biggest issues for me was the loss of spontaneity. Every time we left the house, whether to walk around the block, go to the park or go on a play date, we had to plan around snack and meal times. And I had to carry such a large number of supplies, including everything for injections, plus snacks and emergency juice and glucagon. Not to mention that I had to watch the clock to make sure we had her next snack or meal on time.
We chose to use an insulin pen for her short-acting insulin, which was much simpler and more precise than using syringes. The long-acting insulin that she received at bedtime by syringe always seemed to burn.
Multiple daily injections required so many steps, too: using an alcohol swab to clean both the injection site and the vial of insulin, attaching a pen needle to the insulin pen, giving the injection and then disposing of all the waste. For her long-acting insulin, we also had to draw up the right amount. The cross hairs on a syringe with half units are not really easy to see! If she was spending the night at her grandparents, we had to draw up her long-acting insulin for them.
Not to mention that my child had physical pain four or more times a day!
At one point shortly after diagnosis, she decided that she absolutely did not want to get another injection. What could I do? She needed insulin to literally keep her alive. It was definitely a struggle at times.
When she began kindergarten, being on injections did make her different than her classmates. At that time, the school nurse was only there at lunch time. Because there was no one to give her an injection at other times of the day, her morning snack was restricted to 15 grams of carbs, no matter what or how much the other kids ate. And if the nurse wasn’t there to give her insulin for birthday cupcakes, she had to have one of her 15-carb “special occasion snacks” that we kept stocked at school. We did the best we could back then, even if looking back we could have maybe handled treats a little differently.
(Since then, we have had one teacher who did birthday celebrations at the end of the day so I could give her insulin when I picked her up. Two other teachers had birthday celebrations right after lunch, so the nurse just included the carbs with her lunch count. And taking the treat home to eat with a meal could have been an option as well.)
Having to give our daughter multiple daily injections definitely put a cramp in our style, with the number of steps to give an injection, the loss of spontaneity, the fairly strict eating, injection schedule and issues with birthday treats at school. We mustered through it for quite some time not knowing that there were better-for-us options on the horizon…
Stay tuned for the next chapter in Leighann and her daughter’s diabetes journey: exploring the idea of going on an insulin pump. And keep coming back for the rest of her series, which covers topics like working with their healthcare provider to prepare for an insulin pump, choosing an insulin pump and more.
*Information posted on Podder Talk is not intended to be taken as medical advice. Always consult with your healthcare provider for questions and guidance on managing any health-related issues.
The Omnipod insulin pump takes away the regimented schedules of multiple daily injections and makes managing diabetes easier. Click here to order a free Demo.